Arthritis Foundation Forum / Getting Started on the Message Boards / General Information

Newly Diagnosed with RA

Nancycat — Fri, 01 Apr 2011 15:52:32 GMT

So glad I found this website! Was just diagnosed in Dec. 2010 with RA. Have severe pain/swelling in my knees, ankles, and right hand. Just pain in my hips, spine and elbows. I take methotrexate 5 2.5 mg weekly. So far-nothing except for the side effect of feeling tired all the time. Still having swelling and pain. I am 50 years old and I just feel all the time like a truck has run over me. The really bad part is that I am currently just substituting as a secretary for the local school system-after being employed with the public for 30 years due to the fact that I was feeling so bad that I had to give up full time employment. I have a BA in Business Admin./Accounting. I get really tired in the afternoon, a nap does help-but employers don't like this:P I can't stand for more than 10-15 minutes and I can't sit at a desk for more than 20 minutes because I get so stiff. Now my substituting job is in peril because I haven't been to work since my diagnosis, been waiting for the meds to kick in and take away the stiffness and swelling. My emotions have been on a rollercoaster and I feel like I'm just loosing out...

Fiance in DESPERATE need of advice and information

Stephanie Rangel — Thu, 26 Jan 2012 04:21:32 GMT

Hello to all. My name is Stephanie and I'm engaged to the most wonderful man in the world. We have been having talks about having a child. But there is one problem, my fiance's first born child was diagnosed with Juvenile RA when he was only 2. This would scare any parent into not wanting another child. I would like to know everything that there is to know about RA not for me but for him. We've been together for just about 6 years now and this has never truely hit me until now. My future step-son does get treatment every week he gets a steroid shot on his arm or leg. But I am not educated on the subject. It being something so sensitive to my fiancee we have arguments about it because I just want to know more. If anyone could help me I would be truely grateful.

New Arthritis/ Hip-Replacement Blog

Arley McNeney — Wed, 14 Oct 2009 01:01:48 GMT

Hi all,

Sorry if you've already received this post. I didn't know where to post it. I am a 26-year-old with avascular necrosis. Four months ago, I had a total hip replacement and the surgery didn't go quite as planned; (I'm still walking worse than I was before the surgery and can't use a lot of major muscle groups). Since I had difficulty finding information on hip replacements for young people when I was researching having my replacement, I decided to start a humorous blog called "Young And Hip" to chronicle everything from appointments with my surgeon to getting electrified needles in sensitive places as part of nerve testing to losing my balance and nearly concussing a potential suitor because of post-surgical instability. (It's aimed at young people having a hip replacement, but most of the people who read it are of all ages, and many aren't actually having a hip replacement :)).

If you're interested, the address is: youngandhip.blogspot.com

- Arley

Welcome and General Information

Grandpavan — Sun, 24 Aug 2008 18:06:15 GMT

Most of the action on this site is on the Rheumatoid Arthritis forum and all are welcome to participate in that forum. Below is a copy of a welcoming thread on that site.

First there is a welcome and some information about the board that might be useful. This is followed by general reference information, mostly with links to where details can be obtained.

Welcome to all newbies. We try to give support and information to all so please feel free to join in and post. You can read more about many of us by clicking on our author name. You also have a Profile Page at this site that you can reach by clicking on the link at the top. You can post whatever information about yourself you want to share with us. It helps us to know you better and respond better. We welcome all new members and hope you enjoy being here. We look forward to hearing more from you.

There is also a site e-mail that does not go out to the web but is accessible from this site only. Click on your profile and you can read your e-mails. You can send e-mails by clicking on the author's name for any post and going to their profile. If you want to keep a copy of the e-mails you send, it is best to copy them to your word processing program before sending them.

Each forum contains "threads" that consist of an initial post and any replies that are added by clicking "reply". A new thread is started by going to the view that shows all threads and clicking "new thread" at the top of that page. If you are changing a subject it is best to start a new thread.

Another feature is that we sometimes talk about sharing spoons. That is based on a story to explain the trouble with a chronic illness.

Spoon Theory
http://www.butyoudontlooksick.com/spoons.htm

General information about RA
http://www.arc.org.uk/about_arth/booklets/6033/6033.htm

First Visit to Rheumatologist
http://arthritis.about.com/cs/docpad/a/rheumatologist.htm

RA Diagnostic Criteria (Any 4 qualify for positive diagnosis)
1. Morning stiffness, lasting for at least an hour, present daily for at least 6 weeks
2. Arthritis of 3 or more joints, lasting for at least 6 weeks
3. Arthritis of the hand joints, lasting for at least 6 weeks
4. Symmetric arthritis, lasting for at least 6 weeks
5. Rheumatoid nodules
6. Positive rheumatoid factor (blood test)
7. Joint changes on x-ray

Drugs and interactions
http://www.arthritis.org/conditions/DrugGuide/index.asp
http://www.drugdigest.org/DD/Home
http://www.drugs.com/
http://www.mayoclinic.com/health/drug-information/DrugHerbIndex

Lab Tests
http://arthritiscentral.com/html/testslab.htm
http://www.labtestsonline.org

Financial assistance
https://www.pparx.org/Intro.php
https://www.helpingpatients.org/Intro.php
http://www.needymeds.com
http://www.themedicineprogram.com
Http://www.rxassist.org
http://www.medicationfoundation.com/
http://www.nami.org/Content/ContentGroups/Helpline1/Prescription_ Drug_Patient_Assistance_Programs.htm
http://www.qdrug.com/sf/
http://www.freemedicineprogram.com
http://www.rheumatology.org/public/acrast.asp?aud=pat
http://www.joniandfriends.org/helps/financia.shtml

Social Security Disability Benefits (SSDI and SSI programs)
http://www.ssa.gov/d&s1.htm

RA treatments
http://www.hopkins-arthritis.som.jhmi.edu/rheumatoid/rheum_treat.html

Complementary and Alternative Medicine
http://nccam.nih.gov/health/RA/

Food Intolerance, Elimination Diet
http://www.foodintol.com/food_intolerance/food_intolerance.htm http://www.drcranton.com/elimination_diet.htm

Antibiotic Therapy - Road Back Foundation
http://www.roadback.org

Aggressive Treatment
http://rheumatology.hss.edu/phys/musings/pagetStandardsRA.asp

Emotional Coping with RA
http://www.hss.edu/Conditions/Rheumatoid-Arthritis/Emotional-Impact-Of-Rheumatic-Disease

Fatigue in RA
http://www.hss.edu/Conditions/Rheumatoid-Arthritis/Fatigue-In-Rheumatoid-Arthritis

Assistive Devices
http://www.webmd.com/content/pages/25/113258.htm?z=1834_00000_2244_HZ_06
www.beabletodo.com

Stress (Good, but technical)
http://rheumatology.oxfordjournals.org/cgi/content/full/38/11/1050

First rheumy appt, how to prepare
Message compiled by JeriBeriNanaBana Posted : 12/7/2006 7:59 PM

From arthritis.about.com:
First Visit To The Rheumatologist

A rheumatologist is a medical doctor who specializes in arthritis and related diseases. Most often, a patient is referred to a rheumatologist by their primary care physician after presenting symptoms of arthritis. When preparing for the first appointment with the rheumatologist, there are primarily three things for the patient to consider:

*What should the patient take to the first appointment?
*What can the patient expect?
*What questions should the patient be prepared to ask?

What should you take?

Take your insurance cards and a photo I.D. so that the office personnel can begin to build a medical file. Be prepared to fill out a medical history. Bring along information about medications you take including the name of the drug, dosage, and schedule. Know the dates of pertinent visits to other doctors related to your current situation (i.e. orthopedic surgeons, internal medicine doctors). Be able to describe your current symptoms and the date of onset. If you have prior x-rays which are related, acquire the x-rays and/or reports so the information can be included. Present information about past surgeries (procedures, dates, and name of surgeons).

What can you expect?

You will be taken to an examining room by a nurse. The nurse will take your vital signs and ask you to briefly explain your symptoms and why you have been referred to the rheumatologist. After making a few notes, the nurse will tell the rheumatologist you are ready for the consultation/ examination. The rheumatologist will again ask you to explain your symptoms, in more detail, while examining you. Based on your answers and the findings during the examination, the rheumatologist will order more diagnostic tests.

According to The Collaborative Arthritis Research & Education Services Program, expect the rheumatologist to ask:

*Where and when does it hurt?
*When did you begin to feel the pain?
*Is the pain dull or sharp?
*How long does the pain typically last?
*Do you have swelling or redness of any joints?
*Do your symptoms affect your ability to perform any daily tasks?
*Have you injured the affected joint(s), been in an accident, or recently overused the joint(s)?
*Do any family members have the same or similar problem?
*During the physical exam, the rheumatologist will look for visible evidence of swelling, redness, inflammation, tenderness, rash, nodules, or deformity. The range-of-motion of your joints will also be assessed.

The combination of your medical history, physical examination, and diagnostic test results will help the rheumatologist decide whether or not you have arthritis and what type of arthritis you have. There are over 100 types of arthritis.

What questions should you ask?

Following the examination and interview by the rheumatologist, you will have the opportunity to ask questions. Have your questions pre-planned as much as possible and written down so you will be less likely to forget. Preparedness will afford you the best chance of leaving your initial visit with the rheumatologist armed with a plan. Consider asking your rheumatologist the following questions:

*Do I have arthritis? What type of arthritis do you suspect?
*What treatment will be tried initially?
*What is the action of each medication prescribed? (i.e. Is it a painkiller? Is it an anti-inflammatory drug?)
*When should I expect to notice an improvement?
*If this treatment plan does not work, what would be my next option?
*How will you monitor my progress or the possibility of adverse effects? *Will I require routine blood tests?
*What other avenues should I consider for better management of my arthritis? Regular exercise? Physical therapy? Occupational therapy? Weight management?

Early diagnosis and proper management of arthritis is imperative. A good relationship with your rheumatologist is an integral part of the process. A successful initial consultation can set you in a positive direction.

Message from Susan on Whidbey: Posted : 9/4/2006 12:21 PM
I'm writing because it seems appropriate, with so many joining our ranks, to talk about the emotional upheaval you're now experiencing.

You should know that most of us have gone through the process. First you're just peeking at the posts because you KNOW you probably don't have RA, but there's that nagging fear.
Then, as more symptoms seem to fall into place, you decide to find out for sure because you know SOMETHING is wrong.

Then there is, for many, an interminable wait as symptoms get worse but the blood tests seem normal. And NO you're not a hypochondriac. Take that one off your list right now.

Then, though it may take a second opinion or three or four, you have the diagnosis. You'll feel a smidgeon of relief, but now you've opened up a whole new can of worms.

And right here, when you're really feeling awful because none of the medications kick in for an eternity, you need to look carefully at the rheumatologist and decide whether this is the person with whom you want to be sharing the battle against the rheumatoid monster. This is your first really important decision. You'll read here of the frustration and disappointment that comes of a poor match between patient and doctor. Making the most of your health depends on being able to stay upbeat- and that ain't happening with the wrong combination, no matter how diplomaed he/she is.

But all the while, you'll be going through the classic stages of grief. The sooner you work through denial, anger, guilt, the better. Bottling that stuff up 'for the sake of the family' only holds you back. Go off by yourself, if you must, to scream and cry. Or come here to vent. But get that bad stuff out so you can devote your energy to taking up every sword you can find again the RA monster.

Please know that you are NOT alone. Chances are there is someone here who has already experienced the strangest symptom you can think of. It would be SO much easier if there were a predictable pathway of symptoms and outcomes.

There's not. You'll have to do battle as your body dictates. In that sense, it's a lonely struggle. But this community is united in sharing support, and from that you will gain the strength to keep taming the beast within.

Information about RA? There's loads of it here. Hints, tricks, and inside jokes to boot. But underneath all that is sharing a lifeline with all who join us. Please do and help make us stronger by your participation. Susan-on-Whidbey

Gout Pamphlet

Thomas Gilbert — Tue, 06 Dec 2011 23:26:27 GMT

My wife received the Gout pamphlet today from her doctor. I don't care which major artwork the cover was from, we both found it in bad taste that the cover shows an extremely ancient man. What a blow to the self esteem and hope for a young woman of 53 who suffers from Lupus and RA to have to look at a picture that inspires no hope, but instead paints a picture of "look at what you have become". Imagine yourself getting the bad news of Gout from your doctors and feel as if you are falling apart only to see this representation of a Gout sufferer on the cover.

what is arthritis

people champ — Wed, 09 Nov 2011 02:36:51 GMT

what is arthritis? the answer is arthritis is joint disorder.in this case the joints of the body pain so badly.where joint is a area of a body where two bones of the body are connected with each other.mostly old people had this problem because their bones get old and it pained.that's why they often told that their knee is paining because knee is also a joint area.treatment for this is eat little and do knee exercise like walk in the morning.

Clearing House for Resources to Help The Disabled

Michael Marki — Sun, 25 Sep 2011 16:02:18 GMT

I created a free website of all known resources and benefits to help the Disabled. No costs are involved, I am disabled and no longer able to do community service so instead I devote my time to maintaining my website to help those in need. Go to: [url=http://www.freepeoplehelpingpeople.com]www.freepeoplehelpingpeople.com[/url]

methotrexate

maperkins — Sun, 25 Sep 2011 00:56:46 GMT

I am having trouble getting my mtx injection meds without the preservatives. Does anyone else have this problem? The meds with preservatives aren't working as well as the other.

pnet

halden webmaster — Thu, 08 Sep 2011 08:17:49 GMT

- PNet is South Africa's number 1 job site. Search for jobs across South Africa. Find work. Recruit the ideal candidates. PNet your job portal.

Health_Links

halden webmaster — Thu, 08 Sep 2011 02:25:26 GMT

[url=http://www.morningsiderecovery.com/]California Drug Rehab[/url]Morningside Recovery is a nationally renowned facility for dual diagnosis treatment, alcohol and drug rehabilitation, and single or co-occurring mental illness and mental health treatment.[url=http://www.southcoastrecovery.com/]Affordable Drug Rehab[/url]Drug Rehab Center - Alcohol and Drug Rehab Programs - Drug and Alcohol Treatment Centers - SouthCoast Recovery offers effective and affordable alchoholism and drug rehab, as well as, specialized treatment programs at our Centers in California.

antibiotics for RA?

linncn — Tue, 08 Jan 2008 11:51:13 GMT

Hi. I am new to this board but was dx'd with RA almost one year ago. I currently take 50 mg Enbrel and 25 mg MTX. I was doing very well with this treatment for several months, but have recently been flaring every few weeks. My RD has put a possible switch to Humira or just adding Arava on the table, but I don't really want to do either of these. Am considering AP and am wondering if anyone has had success with this treatment.

OsteoArthritis of the Jaw

Clarissa Powell — Fri, 12 Aug 2011 21:01:23 GMT

Hi everyone,I have just found this wonderful site.. I just had a MRI 3 days ago and the results came back as Osteoarthritic changes severe enough to consider joint replacement or micro surgery.. I have been dealing with the pain in my jaw for 5 years,, radiates in my ear and neck and Have terrible headaches.. After many different bite guards from my dentist, my MD finally ordered an MRI and this is the results I have.. I am being sent to Vanderbuilt to a specialist.. I am scared and could use any advise. Has anyone suffered from this? Oh and I also have fibromyalgia. Please excuse the spelling and grammer.. Any info helpful please.. Thank you so much

RA/NODULES

Darlene Henderson — Mon, 25 Jul 2011 10:59:19 GMT

Is anyone plagued with nodules on your elbow or feet? I've had RA since 1975 and have huge nodules on my feet and elbow. Now they are growing on my fingers. I'm on Embrel and Methotrexate. I noticed since I started the Metho. the nodules have become bigger and more of them. I had the ones removed on one elbow in 1975 and they are coming back. Anyone find that Methotrexate has increased nodules?

Participants needed for Fibromyalgia Study

Nichole Duarte — Wed, 20 Jul 2011 04:14:13 GMT

[b] ** ATTENTION - RESEARCH PARTICIPANTS NEEDED **1. Are you a woman who has been diagnosed with fibromyalgia?2. Are you at least 18 years of age or older?[/b]If you answered yes to these 2 questions, your participation is needed to help expand our understanding of the impact that early childhood experiences may have on fibromyalgia symptoms in adulthood.My name is Nichole A. Duarte and I am currently collecting data for my dissertation study. My study is an investigation of the impact of childhood experiences on fibromyalgia symptoms in adulthood.The following link is an invitation for you to participate in my study. If you are interested in participating, please click on the link below and complete the online survey.The online survey will take approximately 20 minutes to complete. The study is completely confidential and only the researcher will have access to the information from the online survey. All of the information that you provide in the survey will be secure and kept confidential through a password protected and encrypted web-based system. In appreciation for your time and effort, you will earn at least 1 entry (2 entries if you complete all of the survey questions) into a raffle for a $100.00 cash prize.Click on the following direct link to the online survey (or copy and paste this link into your browser): https://alliant.qualtrics.com/SE/?SID=SV_eDtdWPbVfl279pqAlternatively you can email the researcher to request a link to the online survey at fibromyalgiastudy2011@gmail.comShould you have any questions regarding this study, or you have any technical difficulties accessing the online survey, please contact Nichole A. Duarte at (619) 543-5043 between the hours of 9:00 AM - 5:00 PM, Monday through Friday, for more information (please leave your email address or phone number when leaving a message).Feel free to forward this email to friends, family members, or colleagues who may be interested in participating in this study.Thank you in advance for your time, your participation is greatly appreciated.Regards,[i]Nichole A. Duarte, M.A., BCIA-CClinical Psychology Ph.D. ProgramCalifornia School of Professional PsychologyAlliant International University, San Diego[/i]

New with more questions than answers

Wendoodle — Sun, 17 Jul 2011 13:17:31 GMT

I just had my first visit to RA Doc, but it has taken a long time to even get this far in finding out the problem. So I thought I would post here and see what those who are experienced first hand thought. I started out with hip pain and fatigue. As time went on the fatigue became less manageable. The pain is in my right hip, hands, right shoulder legs, and feet. I am often sore just to the touch (sitting in a chair, someone touch, or bumping something really hurts). My hands look like they are inflammation between the knuckles. Both my hands and feet are tender on the bottom side and feel like they have a slight burn when warm water hits them. My underarms are also swollen. I also really feel like I have brain fog. My RF and sed rate were negative in March. However, the inflammation had not started then. I would greatly appreciate any thoughts or advice. Wendy

What to do next?

LovesCuteShoes — Mon, 04 Jul 2011 12:28:26 GMT

Hi, I am a 49 y/o female new to the site not to RA. Have had problems for years. Saw rheum two years ago this month and placed on plaquenil and steroids. Started methotrexate a year and half ago now on 20 mg by injection once a week. RF is negative, ANA was 1:640 with +anti-scleroderma antibodies. At first rheum was unsure of what was going on but have been diagnosed with seronegative RA for the last 8 months or so - multiple finger joints, wrists, elbows, shoulders, knees, ankles and a few toe joints involved with swelling and pain. Xrays two years ago showed swelling and no damage not sure that would be true now - knuckles on my right hand look damaged. I am in a lot of pain with my fingers getting very swollen after typing and working so I am down to part time now. Very stiff in the morning some days are better than others though. Overall I feel better but pain and swelling are still not controlled well. Both my parents have (Dad has passed away) seronegative RA. My mother's aunt had seropositive RA. I also have Hashimoto's thyroiditis.1.) Is this just part of life with RA - the swelling and pain or should it be under control?2.) Rheum is going to add one of the biologics which I am happy about. Which one seems to work best?3.)How often do you end up on steroids despite being on DMARDS? Should I just give in with this flare and start a taper? I have been trying to power my way through this one but am at my wit's end with the pain, stiffness and fatigue. Today after traveling over the weekend I am on the couch in my PJs with my orthopedic shoes on just to provide some proper placement for my feet...I prefer cute shoes though-:)Thanks so much and Happy Fourth of July, Susan

Newbie...have questions, need answers

sumac470 — Sun, 03 Jul 2011 21:42:33 GMT

Hi everyone. I have been "officially" diagnosed with polyarthralgia. My doctor said I was teetering on the fence between polyarthralgia and RA; we are using the polyarth. diagnosis for now. I am seronegative but have high sed. (forgive me, I am learning the language). I have pain in my knees, ankles, feet, wrists and hands. I have had a bout of "suspected pleurisy" from what my rheum doctor could discern. I had gone to the ER of a local small hospital with severe left shoulder, neck, arm and chest pain when I breathed. I thought I was having a heart attack but the ER doctor said a muscle spasm- the symptoms lasted for days. I have a history of flu-like symptoms which include low-grade fever, fatigue and pain that makes my joints feel like they are on fire. I have a strong family history of the gene that causes RA- my mother has it and it is attacking her liver, my brother has a progressed form of RA and ankylosing spondilitis as well as an uncle with the same (my mom's brother). My doctor started treating me with Plaquenil but I couldn't handle the digestive upset it caused and I have a hard time with NSAIDS due to GI upsets. On my most recent visit to the RD I was prescribed an NSAID with a stomach protector. The literature that accompanies this drug warns that a component of the drug is used for abortions... some bad stuff that I am scared to death to take. I am exploring holistic remedies if all we are doing is trying to control pain and inflammation. My doctor is unwilling to do anything but try to control the pain and inflammation and refuses to do xrays to set a baseline or to check for any damage. I am afraid that once he determines I have joint damage it will be too late. [b][b]Is this a normal course of treatment or should I seek a 2nd opinion?[/b][/b] I have seen the damages of waiting in my uncle and brother.

Fibro,RA in cervical area, Pain meds and im still suffering

victoria Ruano, Yeakey — Fri, 15 Apr 2011 21:46:16 GMT

I have had Fibro for 16 yrs know all about those trigger points.Also suffered a severe Head Trauma in 1983. Recebtly having alot of trouble with C123 RA, The pain is so nasty:angry:what else can I do? PLS anybody:crazy:

Severe Pain in neck, lower back and knees and fever...anyone familiar?

Donny R. — Sun, 03 Apr 2011 01:57:19 GMT

Usually once a year I get sick where my back and knees hurt but my overall body is in pain. This year it was bad. I got sick three times in three months. Each time pain got worse.The last episode lead me to the hospital for observation. I usually suffer from knee pain. I am 30y and have suffered from knee pain since I was 20. Every year it gets worse. The last episode I was in sever pain in the lower back leading to my hips, knees and neck with a low grade fever. The pain gets worse when I sit still or sleep in one place for long periods. I also had pain in my hamstrings and tingling in my hands. I am on protonix for GERD and take a MVI, and Bcomplex.Right now I feel okay with mild knee pain and occasional back pain.My lab results look like this: RA Factor @ 13.6, Platelets @ 96, WBC @ 11.3MDs told me it could be viral, RA or Lupus. They were not certain and did not want to be definitive until futher review.I am just concerned the fever and pain will come back again soon. Has anyone had anything similiar to this? Not looking for a diagnosis just a similiar case.

Anyone can be a philanthropist with GiveBack.org

Giveback Org — Fri, 20 May 2011 15:22:13 GMT

Hi everyone,We all have causes we believe in, whether it’s arthritis awareness or diabetes prevention. But we don’t always have the means to give as much as we’d like or know exactly how we can help. That’s why I wanted to let you know about Giveback.org, an easy way to support your favorite causes by simply shopping online.Founded by Stephen Paletta, the winner of Oprah’s Big Give contest in 2008, GiveBack is a digital platform that lets you organize all your charitable giving in one place. In a matter of minutes, you can set up a personal foundation and donate to your favorite charities. GiveBack has partnered with over 400 online merchants, including some of your favorite stores such as Staples, eBay or Macy's, so when members shop, they can automatically earn up to 15% of every purchase toward the cause of their choice.As added motivation to sign up now, GiveBack has kicked off the "100 Days of Giving" contest - one member will win $1,000 for his/her foundation every day until July 16. GiveBack helps anyone be a philanthropist. To get started today, please visit: https://www.giveback.org Best, Krystal GiveBack Outreach Team

Ladies Support Chat

Danuita — Mon, 09 May 2011 16:40:08 GMT

We are a clean, fun and safe chat room for woman whosuffer with chronic pain and seek support. You will find our ladies to be supportive, caring and dedicated to the chat room. The group operates best with supportive memberswho can regularly attend at least three times a week,if even for just several minutes each visit. If interested, please reply to this post and I willget you the resources you need by linking youup with our chat room facilitator. Thank you.....

RA

Cindy Fraley — Mon, 02 May 2011 19:03:52 GMT

Hello everyone, I'm a newbie here. As everyone knows, the weather has been crazy these past few weeks and has really aggravated my arthritis. I take so much tylenol it's ridiculous. I have no insurance cause I decided to stay home to take care of my sister who had an amputation last month due to diabetes. So seeing a rheumatoidologist or paying for rheumatoid medication is out of the question. The main problem I'm having right now is that I wake up with pain in hands and feet, as usual, but other than that I'm ok. Until I start with the housework, taking care of sister, taking her to her appointments. I have no problem physically with these tasks. It's the afterwards I'm having problems with, like pain all over after just one outing to a dr appt, or a short trip (in and out) to the grocery store to get a few items. It just wipes me out, I'm exhausted and in pain and all I want to do is lay down, sometimes I sleep. My sister is doing better and can do most things herself, but she still needs my help and cannot be left alone, she is and always has been a fall risk. I'm hoping it's the cooler weather, cold fronts and rain that's causing it because I'm feeling pretty crappy right now. No choice but to keep going. I used to have a cushy office job, but the repetative typing and 10-key was too much for my hands and upper back, neck and shoulder pain was unbearable. I have used every kind of arthritis cream out there, heating pads, warm showers I can get my hands on. But as you all know these are just "band-aids". Frustrating, my mind is working great but my body isn't. I know you have all felt this way and I know I'm not alone. I'm looking for work at home, maybe selling Avon? For extra income. Just venting I guess, I've had this for about 2 years now and I have come to realize that it's just unpredictable, gotta take one day at a time.

aggressive ra

teri robinson — Thu, 28 Apr 2011 13:00:24 GMT

my ra came on very aggressively. one day i was being treated for a broken wrist-and 20 days later-i couldn't walk. now my mother-in-law is telling me i should see another rheumatologist because she has never heard of this before and i'm taking so many meds and not getting much better. i need to know if anyone else has ever had ra hit them so aggressively.

what kind of spinal arthritis?

pete radmer — Thu, 10 Feb 2011 12:56:34 GMT

This is my first post on this forum. Six days ago, I was diagnosed spinal arthritis. I have been plauged with cronic back pain for some 15 years now. As I am a 40 year old male, and owner of a landscape business, I attributed the pain to 20 years of hard work. I have been very fit for 90% of adult life, but the pain has sidelined me from everything but feeding my family; So that brings me to my question to the wealth of wisdom on this forum. I finally went in to doc. because of severe pain in my lower back that seemed to radiate to r. rear pelvis area, the lower rib cage, and the front of that rib cage on that side closest to my sternum, Furthermore, when I lean foward or to the right, I have the feeling of a basketball inside my right side coupled with increasing knee(s) pain both thumb joints and left wrist,both shoulders,sudden onset of raynauds syndrome, periodic skin flushing, and a host of neurological symptoms. As I have applied herbicides/pesticides/fungicides,for the past 20 years, I have been concerned about Any # of hodgkins disease. My doctor was going to wait 1 mo. to give me the bad news at my next appt. but I called to get the labs and x-rays so I could ease my mind, and do a little homework. The nurse told me my blood work was normal, but gave diagnosis of Spinal arthritis. This is only the third time I have been to doc. in a my adult life and compiled a detailed list of issues seemingly related to this problem in my life, but he would not even look at it.WHAT KIND OF S.A., there are some scary possibilities. Anyway I would really be thankful if a few of you would share a little wisdom with me...LOL -pete-

In So Much Pain

ocealata — Wed, 21 Apr 2010 20:36:18 GMT

New to all of this. I am 56 was diagnoised about 8 months ago. Unfortunatly I have aggressive RA. I already have joints in my hands that are disfiqured. I have tried, MTX, Arava, Plaqinil, and steriods with no success. I finally pleaded with my DR who is a great DR by the way and she has prescribed Minoncycline for me. Has anyone ever tried this? I hate the other meds they hurt your body more than help and I know when I had to take antibiotics for a bad lung infection not long ago it was the ONLY time I have felt no pain and felt totally normal. There has got to be something to this. I will post more in a couple weeks to let you know if this helps. Please anyone that has tried this let me knoow how you did. I was at the end of my rope until now, I have hope. Good luck to you all.Ronda:crying:

Newbie-question-Actemra side effects

Catherine Nelson — Sun, 23 Jan 2011 20:24:57 GMT

Hello,I have had 2 Actemra treatments, I have been so nausious since the first one, I cut back on the amount of methotrexate I take. My Doc called and said my Liver is elevated now also. I'm now noticing my hands and feet are going numb. I have tried almost every med for RA, and I was really hoping this would work. Has anyone had problems with Actemra?

New Here

Kim Brandow — Tue, 23 Nov 2010 20:08:25 GMT

Hello. I just happened on this forum when I was looking for more info on RA. Thought I would post and maybe get some info. I am not totally diagnosed yet. Here is my story so far. I have had some pain in my back for a few years now. I have always had some muscle pain. I went to the dr. about 6 yrs ago because of back pain. He couldn't really find anything and treated it as muscle pull. I asked him about arthritis because it runs in my family but he pretty much dismissed it. He did order an MRI but nothing really came of it. Now for the last 2 yrs I have been working FT, on my feet, and have been having bad pain pretty much all over. My dr sent me to a pain management clinic this past summer and I did some therapy for a few weeks and just had a follow up last week. I finally tell her that I am in major pain and can barely move when I get home as it hurts everywhere and the stiffness is ridiculous. I had asked her about fibromyalgia because I had alot of those symptoms so she listened and sent me for some blood work to rule out anything else. Yesterday I got a call from my primary dr saying that they set me up with a rheumotologist because my rheumatoid factor was high. I see him in 2 weeks. So this is why I am researching RA. I am very overwhelmed right now because I pretty much expected my labs to come back normal. My Mom has osteoarthritis and osteoporosis and is homebound. I do not want to end up like her as she is in so much pain all the time. And she said that RA is worse than osteo. Sorry I rambled. I am just trying to get it all figured out. Guess I should wait for the appt. to get the diagnosis for sure. I never even knew that they could detect RA through blood work until now. Thanks for listening!Kim

Terms of Service and User Agreement

AF Dude — Wed, 17 Nov 2010 15:30:38 GMT

[font=Tahoma][size=2]This is a link to our Terms of Service and user Agreement that everyone on the board should take the time to read. If you are found to be in-violation of any of the Terms of Service and your responsibitly as a user using this site your account will be deleted.[url=http://www.arthritis.org/terms-of-service.php]Terms of Service and user Agreement[/url]Thank You [/size][/font]

Bone or Muscle Pain; Can this be Arthritis?

Thomas Edmonds — Fri, 17 Sep 2010 18:00:01 GMT

Dear Forum,I am a 52 year old male, and have had pain in my right upper arm since I was a child. I remember injuring my arm in a baseball accident as a child. Since, I have had pain in my arm; it seems more in the bone or maybe muscle than the joint, though. Lately it has been getting worse. I had my doctor to xray it to see if it was fractured, and he could see nothing. Could this be arthritis?Thanks!Mike

Spin off problems of RA - heart and anemia

Katie Mae — Fri, 03 Sep 2010 10:54:33 GMT

Hi everyone -I have had RA for 14+ years. I have failed several NSAIDs (Celebrex, Vioxx, and Mobic) and biologics (Humira, Enbrel, and Simponi). Currently I take Prednisone (4 mg/2x day) and Plaquenil (2x day). The rheumy will start me on Orencia later this month.My new problems are severe anemia and mitral valve regurgitation. I received an Iron IV Infusion last month and two days later I swelled up like a balloon (+13 pounds) and started having shortness of breath, chest pains, palipitations, and lightheadedness. My cardiologist is adament that all this was caused by an electrolyte imbalance due to the Prednisone.I would like to know if any of you are collecting other heart and blood problems due to the RA directly or indirectly.Thanks,KM

autoimmune hepatitis

Miller4me — Fri, 16 Jul 2010 13:37:01 GMT

Hi,I've had JRA since I was 4 yrs old...now at 42 the docs think I have autoimmune hepatitis related to the JRA. Anyone else have a similiar condition???ThanksSherry~

Improved symptoms with change in diet?

Jennifer Randel — Wed, 07 Jul 2010 19:42:38 GMT

Hi everyone - has anyone experienced an improvement in RA symptoms after a change in dietary habits or the addition of supplements? I've read that a gluten-free diet may help some people and also eating tons of fish and omega 3s. Any personal experience? I'm trying both, but the results are not in yet...

Enbrel and Medicare

SandyH — Wed, 30 Jun 2010 14:25:18 GMT

Just recently retired from teaching and trying to decide the best options to get optimal help in paying for Enbrel. It is working very well for me and I really do not want to change to one of the infusion type drugs (which is covered by Medicare). My "Sure-Clicks" are of course in the highest tier and instead of the $24/month they cost now, they will be $1700 some months with the doughnut hole and catastrophic coverage stuff they go down to 585 and then 85 but still is a lot of money! Just wondering if anyone else has had to deal with this or is dealing with it right now???? I have a friend who takes it but is not on Social Security and pays $10/mth with the Enbrel Support card.....when you are eligible for Social Security they are not allowed to give us that card-- It is all very confusing right now! Thanks for any comments, Sandy

DTC Disability Tax Credit

Jon Strong — Fri, 09 Apr 2010 22:40:29 GMT

Hello.. does arthritis qualify me for disability tax credit? is it too late to claim? I have also looked around and found a company online that say they can simplify the process, according to an ms article I was spooked to find that the process can be complex. This company's site is [url=http://www.canadadisability.ca]www.canadadisability.ca[/url] Have a look, can such a company really make a difference?

muti-dignoises need help skin on face pelling off has this happened to u?

roxanne 82 — Fri, 28 May 2010 07:34:25 GMT

i am dignoised with ra,sojouns,animiea, severe iron deftion,(new: rosiaha) not sure how to spell it.meds:prednisone 2x5mgX2dayprednisone 10mg (last dose today 1 pill)doxycycline hyc 100mg 1 capx2dayhydroxyzine pan 25mgx4dayleflunomide 20mg x 1daywell last week well i started getting dark red hive type spots on my face.and the dr said it was roasha. the next morning im rushed to the hospital as the rash begain to spread to my lips and eyes and inside of my mouth .(it spead extremely fast) they said it was posion ivy. its been a few days now and the rash has gone down alot but the skin on my face is pelling off in half dollor size thin clear scabs. over half of my face is now extremely red/dark red/w purple spots..im very light skinned) and tender . so now my question..has any one heard of this before.. is threr some thing i can do to potect my face..the dr.s just wrote it off as roashsa and i know it wasnt that . and has not suggested ANY mathoted to help eazy this dryness and pelling..

Hi

marion barrett — Mon, 18 Jan 2010 02:13:27 GMT

Hi! my name is Marion Barrett from US..As I visit this site for the first time and I found this site very useful so I decided to say hi to everyone..Marion Barrett [url=http://www.legalx.net/advertise]Lawyer Marketing[/url]

Down's syndrome, C-spine arthritis, severe headaches

Jeff Weir — Mon, 15 Mar 2010 22:47:20 GMT

Hello everyone my name is Jeff, my brother who is down syndrome and 59 years old started having severe headaches about a month in a half ago. Being down syndrome some testing is limited because he just does not understand. They did CT scan's of his head and neck and found severe arthritis in the C-1 through C-3 area and fused vertebrae in the C-4 through five area. This all started with him waking up one morning in tears. Holding his head and rubbing his neck. The CT scan was done in the emergency room without contrast. I can understand neck pain and a stiff neck but it's hard to comprehend this severe headache type pain that he's having, all focusing around his forehead. And for the symptom to just show up overnight. He is scheduled to go see the spine specialist at UCSF San Francisco this Friday. He sleeps for about 4 to 5 hours and just wakes up in misery, a level 10 pain if I was to rate it. He is currently taking advil and Percocet every four hours. As soon as he tries to move from a lying to a sitting position is when the pain starts. I guess my question is has anybody experienced severe headaches caused by C-spine arthritis. Obviously the condition of his vertebrae has been a longtime thing. He's lived with severe degenerative arthritis of the hip for 15 years and is never expressed this kind of pain. I'm just looking for answers anywhere I can find them. Obviously the emergency room doctors don't show the kind of interest a person with down syndrome needs. My first impression was possibly meningitis, or something vascular, something with spinal fluid pressure. Any help would be appreciated thank you

Site Rules and Responsibilities: Warning to Spammers, Marketers, Salesman etc.,

AF Dude — Mon, 29 Mar 2010 12:01:27 GMT

[size=2][b]Why you are here?[/b]This Arthritis Foundation Forum is for individuals, parents or guardians looking to connect and share information with their peers about their arthritis condition or the condition of a love one.This space is intended for real conversations between it's members about a serious condition to which they care about. At no time on this site are members allowed to solicit, market and or advertise products. [b]Bad Behavior that will get you Banned[/b]Any post claiming to have a cure or miracle product, ask members to contact another member for further product information via email or phone, or make claims about paid surveys for medical research will be removed. These types of post will result in the user being permanently banned from this community.Occasionally members are asked to help participate in legitimate surveys that are beneficial to overall study of arthritis and related diseases. These surveys should be approved or condoned by the community or site administrator. Additional bad behavior that will result in getting banned include: making threats, harassing, stalking, being abusive, or otherwise violate the legal rights (including rights of privacy and publicity) of others.[b]Know the Rules[/b]Upon registering you are responsible for reading our Terms Of Service agreement. If you are unclear as to what type of behavior is permitted on this public forum please visit the TOS page now. [url=http://www.arthritis.org/terms-of-service.php]http://www.arthritis.org/terms-of-service.php[/url]If any user suspects bad behavior by any member of this community please report it to the site administrator.Thanks[/size]

oa .....what the heck

paisley — Sun, 14 Dec 2008 18:53:21 GMT

Well i'm new here,thought i'd better talk to someone because i'm having a hard time understanding what oa really means to me.I was diagnosed 1 yr ago .I developed incredible pain in my lower spine and hips.The doctor told me to lose weight and exercise.I was taking oxycocet and celebrex.So I lost 25lbs and started swimming.The pain went away and I got off the drugs and was feeling good then my shoulder happened.The doctor told me I was having a arthritic flare up because I overdid it and agrivated bone spurs on my shoulder.I felt defeated as he passed me a perscription of celebrex.I worked hard at getting better and now I feel i'm back to square one.Is this what a typical day is gonna look like? Can I expect more of the same . I guess I really want to know what is life gonna be like and where do I go from here.

What are RA symptoms like?

mary keefe — Sat, 16 Jan 2010 07:54:20 GMT

Drs say my sister has RA... we're not sure how others react with RA and were wondering if other RA ptatients could give us some insight.My sister's flare start in just one joint, like her hand or finger, (her finger will look like a sausage) that joint will have severe pain , have swelling, redness , area is hot to the touch, she takes prednisone, then the joint pain start to subside in a day or two, but then another joint will begin to flare, while still on the prednisone.Currently on prednisone since before New Year's, this flare started in her hand, then to her elbow, then to her ankle/foot, and is currently flaring in her knee and yes, she is still on presidone.She can tell when a flare is about to begin, she feels twinges in the joint, and then within hours the severe pain hits, to the point the affected area is rendered incapacitated.This is affecting her quality of life, and her job, as she works in a health careand when a flare hit while at work..... well, the nurses have helped her to her car, so that she can go home, in order to take the pain medication.The nursing staff, say they never seen RA act like this.Does anyone else have any similar symptoms, and has been Diagnosed with RA?Any help would be appreciated.Mary