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Group: Forum Members
Last Login: Thursday, January 14, 2010
Posts: 7,
Visits: 2
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I'm sixteen, very active, just got back from my first varsity ski team race, i was diagnosed with Lyme in fourth grade, but the doctors and my parents say the symptoms started in first grade, i mostly ignored them until i turned into a sloth that sat on my couch or in my bed and slept all day due to pain fatigue headaches ect. Even with regular visits with my doctor he refused to acknowledge my symptoms even when parents asked about doing test or something. any way the antibiotics came to late and while i'm grateful that i no longer suffer the constant headaches and stomachaches the pain never went away. and worse then that, its gotten worse. I usually compare the pain to a ATV accident i had a few years back, racing my dad in Texas, at night(yeah i know not a good idea) i lost control crashed and was thrown from my seat onto the ground. Immediately over the roar of the engine i heard a sickening snap looked down at my arm visibly snapped, later when they got it reset they had to rotate it, pull it out so my wrist wasnt on my forearm then push it back in, but when i got up it felt like, well it hurt like a ##### but comparatively to my everyday pain it wasn't anything. I hate telling this story and trying to explain it to other people but it feels like the people here understand. The same reason i don't like telling people this story is the same reason it took so long for a diagnois, i don't like complaining, im an athlete i don't like when i see people complain, cause in comparassin to what other people have it is nothing. I never say compared to me cause i always feel like im not the severe case, but i dont even know anymore, when you grow up with something, you get used to it, you never forget but you learn not to focus on it. But i also don't like calling myself tough, because i guess i don't see myself as the model of endurace. All i can say is i've been to the emergency room a lot for tramua based stuff, never had to get surgery, yet  , and i would rather have every injury ive ever had forever then the pain of everyday. And its getting worse. My parents have kinda given up on me, but its there fault they did, they've tried doctors from all over trying to make it go away and it hasn't worked, infectious disease, orthopedic, i dont even know the rest, but its considerable. Then when that didn't work we tried people who weren't doctors nutritionists, acupuncturists , massage, yoga, a lot of names in Chinese that i can't hope to spell much less pronounce. And my main feeling i got from all these attempts at fixing me is maybe my parents had the wrong motives going about this. Personaly roughly seven years of only an increase of pain is long enough for me to stop sitting around and just try to improve my quality of life. I've looked into a lot of supplements on this site, a few i already have some I've found at local pharmacies. But now i just want a pain free day, the last time i truly remember that i was on Vicodin, and opiates kinda worry me but freak out my parents, but if thats all i have to look forward too, and if the side affects, including long term ones a minimal and i can function normally with them... wow it seems like all those things are exactly what opiates do. And recently I've been interested in marijuana as a treatment. I've done a lot of research, before hand and am reasonably sure of the risks, but i was surprised by the mixed message i've gotten. I live in New Jersey and we just passed the law allowing medical marijuana in our state. I don't know the exsact law but what ive gotten is it will be allowed for chronic diseases, and severe chronic pain. I used to say six or seven when asked by doctors wanted me to rank my pain, but now its is definitely an eight, of course humans would try to quantify something unquantifiable. anyway, i;m leaving space on the chart cause today is a good day, and 10 is something when you should intimidately be in the hospital. This is one of the most annoying things for me, ranking it, feeling like i have to prove im in pain and that its bad, i know that so many people have it so much worse, but i know that right now for me, its becoming unbearable. Im looking into doctors now that i feel like its degenerating, worried about RA cause of the direct link, but i don't have inflammation and haven't for a long time so i think im good. Sorry guys for the length and if you made it this far i thank you, i should probably post more often so i dont have to go on such a long rant each time. Sorry if its confusing or weird, tried to maintain my unadulterated thought process so you guys can know where im coming from. When ever i post on here i always feel so much better. Any stories or advice would be great, life story or their experience with meds, and cannabis
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Group: Forum Members
Last Login: Monday, August 15, 2011
Posts: 3,
Visits: 3
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| Graig: The AF, NJ Chapter has a lot of great programs for people your age. Call them at 732-283-4300 to get info or get hooked up with other people your age.
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Group: Forum Members
Last Login: Tuesday, November 01, 2011
Posts: 2,
Visits: 7
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Hi Craig, I'm sorry to hear about the tremendous pain you are going through. Though I think my daily pain sounds less severe I would highly recommend trying cannabis (if you haven't already) for your pain, especially since you live in a state where it's legal. It's no longer just prescribed for glaucoma or cancer patients, chronic pain sufferers are eligible as well.
Personally, I've found greater pain relief from marijuana than anything else I've tried and not just while doing it. My pain increases a lot after a few days without it if/when it's unavailable to me. Now that I live in a state where it's illegal, I'm considering talking to my doc about Marinol.
That being said, everybody's pain is different and what works for one may not work for others. Even still, I would definitely consider it a possible avenue that is worth looking into.
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Group: Forum Members
Last Login: Saturday, November 05, 2011
Posts: 5,
Visits: 3
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| I found a spray that works fast and stays on top of my pain for a long time. I hate taking pills and diming my life with narcotics. So anyway I want to suggest this stuff as an alternative. I was totally surprised how it worked for me. Everyones different though. Go online google Natueca eucalyptus spray. It was amazing for me. Hope it helps you. I read about it on one of these forums so that was how I discovered it.
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