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Diagnosed with Juvenile Rhymatoid Atheritis... Expand / Collapse
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Posted Saturday, March 06, 2010


 

Group: Forum Members
Last Login: Tuesday, September 14, 2010
Posts: 2, Visits: 10
Hi, im Emma from the uk and this is my first time visiting this website. I googled juvenile Atheritis and came accross this site and found it comforting to read posts by others in similar situations as myself.
Im 18 and have been diagnosed with atheritis, i also have a bakers cyst in both legs , one ruptured.
i feel so down, as much as family, friends and my boyfriend are supportive and helpful they dont undertand my illness, no-ones does.
I do beauty therapy at college and i am in my last year, i find it difficult to complete my treatments and fear i will never be able to have a succesful career in beauty therapy, and i had such high hopes for myself to own my own salon. My course tutor isnt understanding about me having days off and some of the girls in my class acuse me of slacking and being lazy in salon sesions , they dont understand im in constant pain and the smallest things are such a big task for me now.
Im in pain all of the time, on a morning i can barely walk im stiff until around dinner time, and i start to feel a little better after dosing up on pain killers , but after college i am exhaused and just want to go to bed.
i cannot go out with my friends and do usual things that an 18 year old should be able to do , i recently went on a night out for my friends birthday and ended up going home early in tears i was in that much pain.
I feel 80 years old not 18 , i just want to stay in all the time and i just want to sleep, atheritis is ruining my life and i keep randomly bursting into tears , i am so unhappy.
Does anyone else have my condition ? i would like to talk
Post #4332461
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Posted Sunday, March 07, 2010


 

Group: Forum Members
Last Login: Yesterday @ 10:08 PM
Posts: 7,039, Visits: 6,445
I'm a very long way out of your age group but I would like to invite you to the Rheumatoid Arthritis forum on this site. There are several young adults on that site, and it is a very active site. There are a couple of sites I would like to call your attention to for explaining your situation to others. One is the Spoon Theory (link below) and the other is a letter to those without chronic pain that is pinned at the top of the RA forum I mentioned. I hope you get effective treatment so that you can realize your dreams of a career. God bless.
Spoon Theory – explaining RA to others
http://www.butyoudontlooksick.com/2004/11/the_spoon_theory.php



Age 84, diagnosed RA 12/2001, married since 1952, 4 sons no daughters, 4 grandsons 1 granddaughter. Doing well on Methotrexate and Remicade.
Post #4332839
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Posted Saturday, April 17, 2010


 

Group: Forum Members
Last Login: Thursday, October 06, 2011
Posts: 1, Visits: 7
Hi Emma,

I am 19 and i was just diagnosed with the same thing just two months ago. I had the same cyst in my leg and it actually ruptured. It was the most painful thing I have ever felt. The same as you I somtimes cant even walk its so bad. My medication isnt working and Iam home like everyweekend from college getting some sort of bloodwork done. I am so unhappy and cry for no reason. My friends are school are very supportive as well as my roommates but just like you no one really understands me. It sucks to have it at such a young age and i agree it is deff ruing my life as well!

If you wanna talk let me know because I am going through the same thing
Post #4353445
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Posted Sunday, April 18, 2010


 

Group: Forum Members
Last Login: Yesterday @ 2:44 PM
Posts: 196, Visits: 503
Leanne, Emma, I know almost exactly what you guys are feeling. I'm 17, and it does really really really suck to have it at such a young age. I hate not being able to do simple little things, and I especially hate it when people think I'm being lazy or just don't want to do something. I miss being able to do things someone my age should be doing. So I do them anyway, it takes a lot of courage, but the trick is not to let the disease run your life its hard to do, there are times I don't want to do anything or go out anywhere. Or times when I just break down and cry because I'm sick of all of this. Do your best to make them understand, because if they understand, usually they will sometimes protect or stand up for you if you cant for yourself. One thing I always remember is there's always someone whose got it worse than you. Keep pushing yourself, keep going. Thats one thing I've learned over my 17 years with JRA is not to let it stop me, because if I do, I go no where, I will not let it beat me, and neither should either of you.



I would also suggest reading the spoon theory, its helpful, and if you want to talk let me know


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May the rain WASH away your worries.
May the breeze blow new STRENGTH into your being.
May you walk gently through the WORLD and KNOW its beauty all the DAYS of your life -Apache Blessing
Post #4353676
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