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Group: Forum Members
Last Login: Wednesday, March 16, 2011
Posts: 145,
Visits: 232
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My daughter has been in remission for 3 years and has been off her meds for nearly a year.
I have rushed to her the rheums office a couple times and to the pediatrician's office at least a half dozen times because of knee pain in the last year or two. Every time, I am told it is "not arthritis".
In general, this happens when she is sick, ear infection, head cold, etc and can last anywhere from 2 days to nearly 2 weeks. As much as I am thrilled that it isn't arthritis, this is freaking me out.
This morning, she said she couldn't bend her knee it was so bad, but I don't see any swelling or redness, so I give her motrin and send her to school. I am tempted to bring her to the pediatrician AGAIN, but how many times can I be sent home and told "not arthritis, give her motrin, it will pass"?
Does anyone else experience this?
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Group: Forum Members
Last Login: Wednesday, January 18, 2012
Posts: 1,112,
Visits: 468
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| Could it be pain from damage that occured before remission? I see adults post about that - they are told they are in remission and their only pain is from prior damage to the joint.
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Group: Forum Members
Last Login: Wednesday, March 16, 2011
Posts: 145,
Visits: 232
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I wonder about that. They never did MRIs on her affected joints. They only did one on her TMJ to see if it was affected or not.
I want to bring it up at my next rheum visit, but that isn't for another year! If she is still hurting after school today, I will probably bring her to her pediatrician tomorrow and mention that.
If that's the case, I don't know what they could do though? Sigh.
Thanks for the reply.
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Group: Forum Members
Last Login: Wednesday, January 18, 2012
Posts: 1,112,
Visits: 468
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I guess all you could do is treat the pain until it goes away - and you say it has been going away. Maybe since you figured out it comes with illness usually, you could start sort of pre-treating, like with heat or something?
I have seen adults post that a joint replacement is their only option - but they are suffering constantly before they consider that! It seems like what your daughter experiences now will not get worse, as long as no more damage occurs.
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